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ALL PROCEEDS go directly to the Jonah Pournazarian GSD 1B Fund at the University of Florida. (The families emphasize that not one penny goes to Jonah's personal care — every cent raised goes to research.) Jonah’s doctor, Dr. David Weinstein, director of the University of Florida’s Glycogen Storage Disease Program, is leading a team doing breakthrough research on this rare childhood disease that before 1971 was fatal. Today, the cure is on the horizon: the missing gene and the carrier virus that can deliver the gene effectively have both been identified. And while you probably don’t know anyone with GSD — a disease that affects one in 100,000, or in Jonah’s case, one in 1,000,000 — this research and work has broad implications for a range of other liver diseases.

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