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ALL PROCEEDS go directly to the Jonah Pournazarian GSD 1B Fund at the University of Florida. Jonah’s doctor, Dr. David Weinstein, director of the University of Florida’s Glycogen Storage Disease Program, is leading a team doing breakthrough research on this rare childhood disease that until 1971 was fatal. Today, the cure is on the horizon: the missing gene and the carrier virus that can deliver the gene effectively have both been identified. And while you probably don’t know anyone with GSD — a disease that affects one in 100,000, or in Jonah’s case, one in 1,000,000 — this research and work has broad implications for a range of other liver diseases.

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  • Chocolate Bar, The Book

    It's been another #birthday but Dylan’s wish is the same-#CureGSD for #MyFriendJonah. Please share their amazing story!



  • Chocolate Bar, The Book

    Celebrate Dylan’s 8th birthday by sharing this with 8 friends…or just buy a Chocolate Bar Book and share with a friend! :)



  • Chocolate Bar, The Book

    Please share! Chocolate Bar, The Book is in Portuguese! How cute is that? From our friends in #Brazil to anyone who speaks Portuguese or just anyone who wants to help Dylan make a difference...please buy E Tao Chocolate on Amazon.com here: http://bit.ly/1pBRD8N. As you know, all proceeds go to #CureGSD! #SoChocolateBar Editora voo


    É Tão Chocolate: 1
    www.amazon.com.br
    Dylan Siegel é um garoto que, aos seis anos de idade, escreveu este livro para arrecadar fundos para a pesquisa pela cura da doença de seu melhor amigo. É Tão Chocolate é sobre tudo que é muito legal para ele. Todo o lucro na venda deste livro será destinado a e...
  • Chocolate Bar, The Book

    The boys shared their #SoChocolateBar story today with friends from the Freedom School! Thank you Children's Defense Fund for all that you do! @ChildDefender