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ALL PROCEEDS go directly to the Jonah Pournazarian GSD 1B Fund at the University of Florida. Jonah’s doctor, Dr. David Weinstein, director of the University of Florida’s Glycogen Storage Disease Program, is leading a team doing breakthrough research on this rare childhood disease that until 1971 was fatal. Today, the cure is on the horizon: the missing gene and the carrier virus that can deliver the gene effectively have both been identified. And while you probably don’t know anyone with GSD — a disease that affects one in 100,000, or in Jonah’s case, one in 1,000,000 — this research and work has broad implications for a range of other liver diseases.

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  • Chocolate Bar, The Book

    Please please please we need everyone's prayers now. As if by divine providence, we found out while in Houston that a 13 year old child with GSD is at Texas Children's Hospital in a coma. We just went to see him and his family.

    His name is Mendel and this is a picture of him from just two weeks ago.

    GSD does not need to exist. Mendel does not need to be in a coma. Right now, what is needed are your prayers. Prayers to bring Medel home. Prayers to put an end to an incurable childhood disease that with your help will no longer exist.

    Please share your prayer worldwide.

    #BringMendelHome #CureGSD

  • Chocolate Bar, The Book

    #Houston we have TWO problems. #ImOnBoard

  • Chocolate Bar, The Book

    If ever we've posted the ultimate chocolate bar #captioncontest! Respond with ur best caption and we'll send a Chocolate Bar tee to the person with Dylan and Jonah's favorite caption!

  • Chocolate Bar, The Book

    The boys just wrapped up their reading in El Lago and are heading to The Chocolate Bar in Rice Village in #Houston. Houstonians - please share and come on out to meet the boys and buy a Chocolate Bar, The Book!